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Medical Mysteries  

sexyldy1000 68F  
10180 posts
11/8/2018 11:53 am
Medical Mysteries

Despite the advances research has provided, there are still some rare and complex conditions that modern medicine still struggles to understand. Here are a few.

The Girl Who Never Aged
Brooke Greenberg died at the age of 20 in 2013. But she didn’t look like your average 20-year-old because her body stopped developing at the age of five. Her hair and nails were the only parts of her body that continued to grow year by year. Despite being born premature, doctors remained perplexed as to why she stopped aging. Numerous DNA studies showed no abnormalities in her genes associated with aging. Nor did her parents have a history of abnormal development. Plus, all her sisters were normal and healthy. Scientists continued to refer to her condition as Syndrome X, a metabolic syndrome. Yet, her unusual condition remains unexplained by science.

Mermaid Syndrome
Sirenomelia is a birth defect that partially or completely fuses the legs together, similar to how a mermaid looks. Most newborns born with this condition, don’t survive long. However, Shiloh Pepin lived until she was ten and Tiffany Yorks, the oldest known survivor of the condition, died at age 27 in 2016. The exact cause of
Sirenomelia is still unknown because most cases occur randomly for no reason. Due to this randomness, researchers believe a new mutation or environmental factors may play a role in the development of the disorder.

Highly Superior Autobiographical Memory
If you give Jill Price a date, she can easily tell you what day of the week it fell on and what she did that day. Price was reported as the first known case of Highly Superior Autobiographical Memory (HSAM) in 2006. Since then, more adults and even have been identified as having this ability. People with HSAM can recall almost anything from their memories in minute detail from events in their life to conversations they’ve had. The true mystery is why some people have this superhuman brainpower and others don’t. Brain images of people with HSAM have shown researchers that some parts of their brain structure are different from people who have a typical memory. But it’s not yet known if these brain differences cause HSAM or if they occur because the person uses areas of the brain associated with memory more.

Water Allergies
Fewer than 100 people in the world have been diagnosed with aquagenic urticaria, a rare condition where people break out in hives or rashes every time they’re exposed to water. However, researchers have not found an underlying cause for the condition. Some scientific theories suggest that the hives are caused by an allergen in the water or an interaction between the water and a substance found in or on the skin that generates a toxic material, which causes hives. Some doctors recommend patients only bathe in or drink purified water.

Stiff Person Syndrome
This rare, progressive syndrome known as Stiff Person Syndrome (SPS) can cause people to experience extreme stiffness, rigidity, and painful spasms in their muscles. Sometimes, these muscle spasms are so strong they can even fracture bones. When the central nervous system, specifically in the brain and spinal cord, has decreased inhibition, it can cause a person’s muscle activity to increase, which can result in SPS. Scientists think the syndrome may have an autoimmune component and research has indicated that it may occur when the immune system mistakenly attacks the brain and spinal cord. Although scientists are on the cusp of discovering what could cause this disabling disorder, they still have yet to understand everything about SPS.

Disembarkment Syndrome
You know that feeling you get when you feel wobbly after you disembark a boat? You’ve probably heard someone say you’re “getting your land legs back.” For most people, this feeling of being in constant motion usually goes away after a few minutes or hours. But some people suffer from disembarkment syndrome, a condition where their bodies and brains can never shake that feeling of swaying and rocking. Unfortunately, it’s a hard condition to treat and usually goes away within a year. And it’s not just limited to being out on a boat either; riding in planes, trains, cars, even elevators can cause it too. Unfortunately, doctors still aren’t sure what really lies behind disembarkment syndrome. . People who get migraines and women ages 30 to 60 are more likely to get it, but experts are uncertain if hormones play a role or how migraines could be linked.

Morgellons Disease
People with this skin condition typically feel like something is stinging or crawling all over their skin. Morgellons Disease is an uncommon skin condition, characterized by small fibres or particles emerging from skin sores. Some doctors think the condition is all in the patient’s head and try to treat them with cognitive behavioural therapy, antidepressants, antipsychotic drugs, or counselling, while others in the medical field think the fibres could be caused by an infection from the bacterium Agrobacterium, commonly found to cause tumours in plants. There’s still no official guidelines on diagnosis and treatment.

The Boy Who Doesn’t Feel Hungry
In October 2013, Landon Jones, a 12-year-old boy from Iowa, suddenly woke up without an appetite or thirst. It only took a year for the boy to go from a healthy 104 pounds to a meager 68 pounds. Doctors were baffled by his condition after countless brain scans, psychiatric evaluations, and medical evaluations for digestive problems or eating disorders showed nothing. Some doctors wonder if he suffers from a rare brain dysfunction, particularly in the hypothalamus, the part of the brain that controls hunger and thirst. In 2014, his parents reached out to the National Institutes of Health to help evaluate Landon and possibly treat him for this rare disease. But there’s been no news to-date to say if doctors have determined a diagnosis.

Had you previously heard of any of these conditions?
Any others you are aware of?


(@Reader's Digest)


sexyldy1000 68F  
9607 posts
11/8/2018 11:55 am

Medical research saves lives. Have you benefited as a result?


Platosgames 102M
3189 posts
11/8/2018 12:50 pm

Interesting read..Thank god I don't have water allergies. I'd rather be dead than unable to jump in the ocean.

" I refuse to belong to any organization that would accept me as a member" Groucho Marx


HAMONMAN 64M
13128 posts
11/8/2018 12:59 pm

TCS - Throbbing Clitoris Syndrome


sexyldy1000 68F  
9607 posts
11/8/2018 1:19 pm

    Quoting Platosgames:
    Interesting read..Thank god I don't have water allergies. I'd rather be dead than unable to jump in the ocean.
When you read about what others are dealing with, makes you appreciate what you have!


sexyldy1000 68F  
9607 posts
11/8/2018 1:21 pm

    Quoting HAMONMAN:
    TCS - Throbbing Clitoris Syndrome
Hmmmm - think that's one many of us are aware of.


Tmptrzz 61F  
107039 posts
11/8/2018 1:22 pm

These are some very interesting Medical Conditions which I have never heard of before, god if my sister was reading these she would think she has some of these as she's quite the Hypochondriac that's a person who thinks they have every thing they see and hear about.

These were a great read, and great information too, thanks so much and I hope your enjoying a terrific Thursday..

Seduce the mind and see what a wonderful adventure the body will take you on..


Paulxx001 67M
22642 posts
11/8/2018 1:36 pm

The one that I am interested in is - Highly Superior Autobiographical Memory... Can you please do some additional research and get back to me with possible ways I can Improve my memory . . I am serious !
Thanks . .. What was the question ?


sexyldy1000 68F  
9607 posts
11/8/2018 1:38 pm

    Quoting Tmptrzz:
    These are some very interesting Medical Conditions which I have never heard of before, god if my sister was reading these she would think she has some of these as she's quite the Hypochondriac that's a person who thinks they have every thing they see and hear about.

    These were a great read, and great information too, thanks so much and I hope your enjoying a terrific Thursday..
Reading about these, makes you wonder how those affected manage to cope.
It's a blustery Autumn day here and feels like Winter is not far away. Enjoy the rest of your day and evening


sexyldy1000 68F  
9607 posts
11/8/2018 1:43 pm

    Quoting Paulxx001:
    The one that I am interested in is - Highly Superior Autobiographical Memory... Can you please do some additional research and get back to me with possible ways I can Improve my memory . . I am serious !
    Thanks . .. What was the question ?
LOL. Be careful what you ask for. As you can tell, being detailed and analytical is something I enjoy. So since you asked:

You can harness the natural power of neuroplasticity to increase your cognitive abilities, enhance your ability to learn new information, and improve your memory at any age. These 9 tips can show you how:
Give your brain a workout
Don't skip the physical exercise
Get your Zs
Make time for friends
Keep stress in check
Have a laugh
Eat a brain-boosting diet
Identify and treat health problems
Take practical steps to support learning and memory


sexyldy1000 68F  
9607 posts
11/8/2018 3:26 pm

    Quoting  :

I had heard of a few also including the Autobiographical Memory.
Human beings are amazing creatures 😊


lukeaskewedx2 64M
254 posts
11/8/2018 4:13 pm

I've been diagnosed with extreme cynicism, my friends and family tell me it's hard to live with.

I reckon so


sexyldy1000 68F  
9607 posts
11/8/2018 5:01 pm

    Quoting lukeaskewedx2:
    I've been diagnosed with extreme cynicism, my friends and family tell me it's hard to live with.
Who knew? Should we hold a fundraiser for you?


mc_justmc 63M

11/8/2018 9:02 pm

While I've never heard of these diseases having someone around with HSAM would sure make grocery shopping without a list easier. I think I might have had Morgellon's Disease back in my drug days because feeling like something was crawling on me was one of the side effects. So was the total loss of appetite. Awwwww the good old days.


phillsratg 64M

11/8/2018 9:11 pm

I have been very fortunate that there have been but, 1, birth affect to 1 Baby born to the Family. She didn't live Long and there is a lot of research into birth Defects, all the research seems to find something right after ya loose someone to the precure yesterday!


sexyldy1000 68F  
9607 posts
11/8/2018 9:51 pm

    Quoting mc_justmc:
    While I've never heard of these diseases having someone around with HSAM would sure make grocery shopping without a list easier. I think I might have had Morgellon's Disease back in my drug days because feeling like something was crawling on me was one of the side effects. So was the total loss of appetite. Awwwww the good old days.
Yikes! Sounds kind of scary. You must be happy to be able to stretch out on the beach with your toes in the sand.


sexyldy1000 68F  
9607 posts
11/8/2018 9:53 pm

    Quoting phillsratg:
    I have been very fortunate that there have been but, 1, birth affect to 1 Baby born to the Family. She didn't live Long and there is a lot of research into birth Defects, all the research seems to find something right after ya loose someone to the precure yesterday!
That must have been very difficult. Thanks for stopping by and sharing.


LakeRidgeBBWSeek 63M
3847 posts
11/8/2018 10:51 pm

I was diagnosed with Morgellons about a year ago, before my heart 'event", by my dermatologist. I went in hoping for treatment of what I thought was a specific variation/form of psoariasis, which I have had since birth (yeah, 60+ years & counting) and at last count there are at least 32 varieties, most of which dont respond to treatment well. I had never heard of Morgellons, as most folks havnt, and he looked at the lesions I was concerned about, then asked me questions which were just what Morgellons patients report, bingo. Sadly tho, no known treatment other then meds to calm nerves, meaning oppiods, which I will not take. And he also said YES, I had psoariasis too, which I knew having een diagnosed by over a dzn docs in my lifetime. I apparently have a mild form so far tho. That along with my other med issues make my life interesting to say the least.


sexyldy1000 68F  
9607 posts
11/8/2018 11:00 pm

    Quoting LakeRidgeBBWSeek:
    I was diagnosed with Morgellons about a year ago, before my heart 'event", by my dermatologist. I went in hoping for treatment of what I thought was a specific variation/form of psoariasis, which I have had since birth (yeah, 60+ years & counting) and at last count there are at least 32 varieties, most of which dont respond to treatment well. I had never heard of Morgellons, as most folks havnt, and he looked at the lesions I was concerned about, then asked me questions which were just what Morgellons patients report, bingo. Sadly tho, no known treatment other then meds to calm nerves, meaning oppiods, which I will not take. And he also said YES, I had psoariasis too, which I knew having een diagnosed by over a dzn docs in my lifetime. I apparently have a mild form so far tho. That along with my other med issues make my life interesting to say the least.
Thank you for sharing your story. Hope a cure and appropriate treatment is found for you.


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